Patient Resources
The following links may assist you in understanding and managing your condition, plus contain information on finding support and general wellbeing. Please note these resources link to external websites and are provided as general information only.
The NTM Australian Research Network, in collaboration with the NTM Australia Support Group, is holding an online seminar series for patients with NTM.
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Date/Time: Thursday 28 August, 2025, 2pm AEST
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Topic: Mycobacterium avium complex Core Outcomes Research (MACCOR)
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Speaker: Cara Varley, MD, MPH; Assistant Professor of Medicine, Division of Infectious Diseases, School of Medicine, OHSU
Speaker Bio:
Dr. Varley is an infectious disease specialist, board certified in both Internal Medicine and Infectious Diseases, and sees patients in the Oregon Mycobacterial Clinic. Dr. Varley’s primary research interest is the epidemiology of pulmonary NTM disease, specifically disease progression and development of outcome measures. In collaboration with Dr. Kevin Winthrop, Dr. Luke Strnad and the OHSU-PSU School of Public Health Center for Infectious Disease Studies, she serves as Primary investigator and Co-investigator on various NTM disease clinical trials.
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How to Register: Please email the Support Group ntm.aus@gmail.com (do not just reply to this email as this is for the Research group) and include the following information:
· Name
· Zoom session: MACCOR
· Questions for the speaker
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Please ensure Zoom is installed and that you have tested your audio settings – you will receive a link to join prior to the online session. Please note these sessions are NOT recorded. Presenter slides and/or notes will be shared after the presentation with their permission.
The NTM Australia site gives Australian NTM and bronchiectasis patients an online hub to connect with their patient support group leader, Debbie Wooster, and to find additional information on NTM treatment in Australia.
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A community for NTM and Bronchiectasis patients to collaborate, support, and share insights with one another.
Lung Foundation Australia funds life-changing research and delivers support services that give hope to people living with lung disease or lung cancer
The Sleep Health Foundation is a not for profit health promotion charity that aims to raise community awareness about the value of sleep and its common disorders, and to improve public health and safety.
The Bronchiectasis Toolbox is a multidisciplinary resource for the diagnosis and management of people with bronchiectasis. The content, based on national and international guidelines, is designed to provide guidance for health professionals who are providing care to children or adults with bronchiectasis.
